Aubrey Faith is the angel baby of Andrew and Michelle (Farmer) Rainey of Duck Hill, MS. At 6 weeks of age, Aubrey was diagnosed with a life threatening disease called Biliary Atresia (BA). Biliary Atresia is a rare pediatric liver disease involving the bile ducts that requires a liver transplant due to progressive liver damage. The main symptoms are prolonged jaundice and white colored stool. At the age of 1 year, she was placed on the Liver Transplant list at Texas Children's Hospital. Over the next two years, she stole the hearts of many with her sparkly blue eyes and soft red curls. She was full of spirit and personality.
In March of 2015, Aubrey went to the hospital in her home state for dental work. It was found she had low oxygen levels and had to be placed on continuous oxygen. Aubrey's liver disease had caused hepatopulmonary syndrome, also a rare a condition, where the liver's damage affected her lungs and made it hard for her body to properly oxygenate itself. She and her family temporarily relocated to Houston, TX to be closer to Aubrey's transplant team and were there for 5 1/2 months. She needed a new liver soon to reverse the effects of hepatopulmonary syndrome.
Aubrey was a brave and strong girl. A week after her 3rd birthday, she began running a very high fever and was admitted to TCH. Though many, many tests were performed, the reason for the fever was never found. About two weeks later, it resolved and was believed to be related to her liver's poor status. She received a total of 9 offers for a liver transplant while in Texas, but the first 8 were incompatible for her for one reason or another. Aubrey's 9th liver offer was received and she had her transplant on Sunday, August 16th, 2015. She was so tired, but pulled through the major surgery beautifully. Aubrey was recovering well and was to be sent to the regular floor on Thursday, but there were no rooms available. Friday morning, very early, Aubrey suffered a traumatic brain bleed. It was very unexpected and unexplainable. Aubrey went through major brain surgery to try and remove pressure that Friday morning. Aubrey made it through brain surgery, though doctors thought she wouldn't, and she lived with us for 5 more days. On Wednesday, August 26th, 2015, Aubrey gained her angel wings.
Texas Children's Hospital wanted to do something special to honor little Princess Aubrey. In her memory, they created "The Aubrey Rainey Fund for Biliary Atresia Research". This fund must establish a $25,000 baseline to be a "forever" fund by Sept 2016.
The life of this precious girl has touched the hearts of many all over the world. The depths at which her parents hurt is beyond words.
Please consider making a tax deductible, monetary donation to Aubrey's research fund. Help us stop the need for the number one reason for pediatric liver transplants, help us stop the endless medications, oxygen machines, needle sticks, tears. Help us find a cure for Biliary Atresia. May no other family loose their precious child to this disease and may Aubrey's purpose in this world truly change lives with a cure found through her fund.
Please pray for the Rainey and Farmer families, as they will forever be missing a piece of their hearts.
Until we see you again, sweet Aubrey.
Click "Donate" now at the top of the page to make a difference.
Please be SURE to change "Designation" to OTHER and type in "Aubrey Rainey Research Fund".